Tag Archives: information technology

Let’s Decide!

6 Jun

The title of this post can be found written in large, bold letters in the notes I took during a meeting on Tuesday. “LET’S DECIDE!” It followed the side comment (my notes from any meeting are filled with side comments and/or digressions), “Basically, we can facilitate this work and see that as our role or keep doing our own thing.” I realize that it’s not truly an “either/or” situation, but…

Maybe I should offer a little background, first.

Initially, Aim 2 in the proposal for my work as an informationist on the mammography study was this:

Aim 2: Assist investigators in identifying and reporting information technology issues that have arisen in the implementation of the study that may be of use to others.

After spending a great deal of time searching the literature in fields from information technology to medical informatics to team science (or simply teamwork), I realized that not much existed that fit the issues that they’d encountered. Further, I wasn’t convinced that writing an article and/or white paper on the topic was the place to start in terms of reporting their experience. I thought that perhaps bringing people together, i.e. the different stakeholders, to talk about the issues, problems, lessons learned, etc. that occur when IT folks and a research team come together to work on a project. I felt that such a discussion would yield a lot of valuable information that could then, somehow, be collected, organized, and disseminated in a useful manner. After a lot of talk and brainstorming within the team, we all agreed that this seemed a good path to take.

Making a long story short, this idea took hold, evolved, grew, and a couple of weeks ago, took the form of a mini-symposium that was part of the annual research retreat for our Center for Clinical and Translational Science. The program, entitled, “Data Acquisition, Data Management, and Subject Tracking in Clinical and Translational Research: Seeking Solutions to Persistent Challenges,” brought together the researchers from the mammography study, two faculty members from our Department of Quantitative Health Sciences, a biostatistician from the University of Massachusetts, Lowell, and a representative from our Information Services department. My role now is to pull all of the content from the symposium, along with other useful resources, and make it available online for the benefit of our research community.

This is all a really happy story for me in that I’ve been able to help facilitate and see something come together that we have been talking about in my library for a number of years now. Finally… FINALLY … people are starting to talk about issues around data. For too long, the only folks that I’ve heard talking about managing data are librarians. And frustratingly, we’ve mostly been talking among ourselves. But over the past months, I’ve been able to watch people that we’ve been wanting to reach addressing the issue. And best of all, the different players are talking to one another and not just among themselves.

So why the frustrating digression in my notes from Tuesday? Well, it’s because in my position, I can see several things happening. First, I can see several different camps, including the library, trying to stake their claim on one or another aspect in the data management services suite. And there’s a lot of overlap.

Secondly, there’s a lot of the feeling of “we’re the experts, so we should be the ones to do this.” Going along with this is also a lack of awareness and/or understanding of what each stakeholder really is expert in. For example, I might think that the people in Information Services ought to address issues around data storage and security. This is true, of course, but it leaves out the expertise that some in that department have around the proper ways to build databases and thus best practices in file structures and naming conventions and other things that might make me want to say, “Hey! That’s my area of expertise, not yours.” Similarly, many libraries developing data management services are focusing a great deal on providing data management planning in grant applications, but if you asked my colleagues in Quantitative Health Sciences, they’d say, “That’s what we do. Why are you saying it’s your role?”

talk talk talkLastly, despite the success of the mini-symposium, there’s still an awful lot of “talking amongst ourselves” going on. I see this more easily, and thus get a little frustrated at times, because I have my foot in several different areas where I’m hearing the same message. In other words, despite the success of bringing people together for the mini-symposium, there’s still a lot of room for improving how well we communicate and coordinate our efforts, not only campus-wide, but even within my library. So when I wrote “LET’S DECIDE!” it was my reaction to what I see as a really big need that we can fill. There is a huge need for someone to fix the broken communication system, help eliminate some of the duplication of efforts, and facilitate the development of services around data within my institution. And I believe that someone is me and my colleagues in the library. 

One of the characteristics of the library that was lost when we brought our resources to the researchers was our place as the hub of a lot of academic activity. People used to come to our physical library and here the different worlds of campus would collide. Researchers and faculty members and clinicians were forcibly less isolated in labs or offices. They literally ran into one another and likely had a bigger picture of things that were going on, simply through the interactions. At the same time, librarians were more easily able to know a lot of what was going on, too. We had a front row seat for all of the collisions. What I’ve found, as I got out of the library and started working on research teams, is that by going to the people that used to come to us, I’m bringing that lost quality back to life. While it can be incredibly frustrating to observe different groups addressing the same issues, each unaware of what the other is up to, the fact is that I can make them aware.

The mammography study team didn’t know that a team in the library has been working and working and working towards a goal of teaching good data management practices to the students, but as I’m a member of both teams, I did. So, when the study team made a suggestion that we recreate the symposium via a webinar series, archive it, and make it available to the students as part of their curriculum, I immediately chimed in, “Wait! Let me tell you what we’ve been working on.” A similar thing happened with the data management group in Quantitative Health Sciences. And now, we have a meeting scheduled for next month where we will bring these groups together – the research team, the QHS group, IS, and the library’s data services group.

To me, being able to facilitate these gatherings is one of the most rewarding parts of this informationist work. It’s a great role for librarians to take in the area of data management. As I wrote a few posts back, it’s the networking aspect of eScience and a place where we can put our skills to good use. The library itself used to bring people together. Today, librarians do.

Share and Share Alike

17 Jan

PMC ArticleBefore I even get started with this week’s post, let me first draw your attention to this little bit of awesomeness, after all, it’s not every day that you (well, at least I) get to see yourself in print. I feel that I just have to do a little shout out. Plus, my poetic welcome to the attendees of MLA 2013 may well be the most valuable legacy that I ever leave to my profession. 

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Back to the reality of our work at hand, I had a few experiences this week that got me thinking about where and/or how dissemination of knowledge fits into our role as knowledge and information management professionals. The first of these occurred during the weekly meeting of the mammography study team. This week’s meeting was different in that it involved bringing together not only the primary members of the team, but also the players from the technology aspects of it, specifically the programmers from Claricode, and the IT people from Fallon Insurance Company and Reliant Health Care. These individuals have played a key role in the study related to developing the software platform used to collect telephone interview data (the CATI system), pulling necessary data from insurance and health records, and coordinating the disparate data sources into a tracking database that can, ultimately, provide the data for analysis. It’s been no small task from the very beginning of the project. In fact, the very issues raised in the bringing together of these people to accomplish the necessary technological aspects of the study are the ones that led to Aim 2 of the informationist supplement grant that brought me to the study:

Aim 2: Assist investigators in identifying and reporting information technology issues that have arisen in the implementation of the study that may be of use to others.

Initially, we thought that the deliverable for Aim 2 would be a white paper; an outline of the different issues, along with references to the literature, that could be shared with both the clinical research and IT communities, with hopes that the information would prove helpful to those who sought to do this type of collaborative work in the future. In short, the team believes that they have learned some things, including some mistakes that others might want to avoid. However, as we began talking about the topic and I began searching the literature for relevant articles, I found that not much existed that touched on just what we were trying to articulate. This fact led us to discuss whether or not a white paper was the best way to go with this topic/issue. Perhaps a symposium, a meeting that could actually bring the different players – clinicians, researchers, computer programmers, software developers, etc. – together to share insights and brainstorm ideas for how we could all work better together. But this thought got us to wondering more about just who we’d invite. Who are the real stakeholders in this situation? Who would find this interesting? Do clinicians want to talk to developers? Do programmers have the faintest interest in problem-solving with medical researchers? We weren’t sure, so we decided the best way to begin would be to simply bring all of us together – all of the people who have worked on this project for the past 5 years – and see if this group, at least, could identify topics, issues, and/or projects in this area worth moving forward on. 

In short, we found out that the answer is YES!

That’s good news. We could easily list off any number of “lessons learned” and “things to consider next time.” Everyone agreed that we have knowledge that can be useful to others. Excellent!

Now let me tell you about a couple of other experiences of the week before I tie them all together. This one happened yesterday when a group of us from my library were taking part in a webinar for the current eScience Institute run by Duraspace, the Council on Information Library Resources, and the Digital Library Federation. The Institute is a continuation of a project funded by the Association of Research Libraries that began several years ago. It’s objective is to help research libraries assess the data and/or cyber-infrastructure needs of their universities, mostly through conducting environmental scans, surveys, needs assessments, and the like. It involves interviewing key stakeholders in each library’s respective institution, thus providing a better picture and/or road map for planning library services in the areas associated with data management. Our cohort consists of about 25 other libraries. Combined with the previous years, approximately 120 libraries have taken part in this initiative.

As we listened in, someone in our group asked, “Do we share our findings with the other libraries?” Our leader typed the question into the chat box and the answer we received was along the lines of “You can, if you wish.” Now this is, to me, well… well, it’s strange. I’ll just say it. Strange. It’s strange because of every profession on the planet, which one is best associated with sharing? I’m thinking that it’s us. Libraries. Librarians. Librarianship. We are founded on the principle of sharing. At least in part. One of the biggest forces driving the movement of libraries into data management is the concept (for some, mandates) of data sharing. We, of all people, know the benefits of sharing. That’s why we’re advocates here. So to me, it’s kind of strange to find a whole bunch of libraries involved in a project where all of the information, data, and most importantly, knowledge discovered in the process of going through these exercises isn’t being readily shared. Why? How can this be? Maybe I just misunderstood.

Also yesterday, my library’s journal club met and discussed the article, “The New Medical Library Association Research Agenda: Final Results from a Three-Phase Delphi Study,” (Eldredge, Ascher, Holmes, and Harris). The paper reports on the process undertaken by the researchers to identify the leading research questions in the field of medical librarianship as they were identified by members of MLA’s Research Section, as well as leadership within different levels of the organization. As we looked over and discussed the list of questions in the article, many people noted that they remain the same questions that we’ve been asking for years, e.g. questions of the value of librarians, the value of libraries, the information needs of our patron groups, etc. The comment was also made, both in our group’s discussion and in the paper, that some of these questions may well have been answered already. To this thought I commented, “Well evidently not well enough, if those with vested interests and notable involvement in our profession still have them.” Or maybe less cynically, my comment could have been, “Perhaps so, but if this is the case, we haven’t done a very good job of sharing that knowledge, because we still have the questions.”

All of this leads me back to a bigger question that’s become quite clear to me of late as I continue to observe or be a part of these type experiences, i.e. How do we share what we know with others?

To me, this is a HUGE need in the world of knowledge and information management where librarians can help. Quite honestly, I’m not clear on all of the ways that we can help, but I absolutely believe that there is a place for us here. We are experts in gathering and organizing information. We have the skills that allow us to make that information accessible. We know how to evaluate materials, weed out junk, and build strong collections (notice how I never use a certain trendy word in describing these activities). These are all foundations to sharing information and, ultimately, knowledge.

However, it’s the next step where we need to bring our own skills up to the task. It’s the next step that’s woefully missing in the whole “knowledge sharing” world. To me, that step is dissemination. Better put, effective dissemination. That is where the sharing of knowledge happens and I’m not sure that anyone is doing the best job at it today.

Researchers within their own institutions don’t know what their colleagues are doing; what their colleagues are discovering. How can we help them with this? They want to know. They tell us this. But so far nobody has been able to create the resources or the tools or the environment to make this happen, at least not in a seamless, integrated way. Libraries have tried, but as one of our Library Fellows said to me, “We have a ‘Field of Dreams’ mentality. We think that if we just build the resource, everyone will use it.” I agree. We are quite capable of building resource guides and special collections, but unless people use them, the information they contain just sits there. The knowledge that they are capable of spreading is trapped. A “Help Manual” is of no help when no one reads it.

I said to that same Fellow, “I have really no idea how to solve the problem yet, but that’s always the first step. Recognizing it.” But I do really believe that if we can become adept at whatever all of the skills are that we need to build and implement resources that fit into the workflows and the paths and the processes of our patrons, we will have discovered an entire new area of work for our profession. Part behaviorist, part ethnographer, part programmer, part librarian… likely a combination of these and more. It’s no simple problem to solve, but it’s an awfully big key to sharing and as we have long been the leaders in that act, I see no reason why we should stop now. 

*Interested in thinking about this more? Here’s a podcast and a paper that I’ve assigned as the material for the February journal club in my library.