Tag Archives: health data

Like that Dam in California… Overflow!

14 Feb

oroville_dam_spillover_2017-02-11Not to make light of the scary news out of California this week regarding the eroding of Oroville Dam, but some of the images did make me think of my overflowing bookmark list of things to share with with my readers. So many! So here goes:

There’s much about Fake News in the real news lately, including the role that librarians can play (see the PBS NewsHour story, Why These Librarians are Protesting Trump’s Executive Orders, by Elizabeth Flock) and can’t play (see Information Literacy Won’t Save Us; or, Fight Fascism, Don’t Create a LibGuide, by IJClark) when it comes to media literacy. I find there to be interesting and credible arguments on both sides, but more than anything, I’m heartened by the rekindled notion of the importance of our profession in the discussion.

Somewhat related is Mattie Quinn’s story for the website, Governing; For the Poorest and Sickest, Librarians Often Play Doctor. As a medical librarian, I found this story of particular interest.

A few useful resources:

  • Think Outside The Slide has a nice list of free resources to make PowerPoint presentations more effective. 
  • MapBox provides a platform for adding maps to your mobile apps. While it’s a paid service, there is a level available for free that you can try.
  • Back in October, I attended a terrific workshop on bibliometrics and research assessment, co-hosted by the NIH Library and the Maryland Chapter of the Special Libraries Association. The materials are now available online. You’ll find a couple of really good keynote talks, plus a whole bunch of interesting posters by colleagues in the field. Great stuff!
  • ProPublica the independent, nonprofit, investigative journalism outfit has created a number of applets using IFTTT, that work with different media tools (Evernote, Pocket, mail, calendars, etc.) to keep you up-to-date on different aspects of U.S. politics, including when the President signs a new law, when Congress schedules a vote, and a weekly/daily Congressional digest. These are great for staying informed and, if one is so inclined, for activism.
  •  The International Consortium for Health Outcomes Measurement (ICHOM) is a non-profit organization devoted to bettering health care systems worldwide by “measuring and reporting patient outcomes in a standardized way.” On their website, you can find a lengthy, growing list of Standard Sets for a variety of medical conditions, along with literature on how to read, interpret and use the findings.
  • Finally, WordCounter.net needs no explanation. It’s a handy online tool. 

I really enjoy following the website, StatNews. I find it to be a thoughtful, credible source for current news on health and medicine. If you’ve yet to discover Stat, here are a couple of stories that I recently read to introduce you to their work:

Another interesting health care-related story is Martha Bebinger’s story (WBUR), What if We Really Knew Where to Get the Best Cancer Care: The Prostate as Case Study. It gets one to thinking about what we know, what we don’t know, what we can know, and what we might not want to know when it comes to health data and medical treatments. 

If you’re fascinated with space and all things astronaut related, as I am, you likely know about the really cool “Twin Study” that’s been ongoing at NASA using the identical twins, Mark and Scott Kelly, as subjects to study the longterm effects of space travel – findings that also inform down-to-earth subjects like aging, muscle growth, and other aspects related to gene expression. The first findings were published on the NASA website in late January and they contained both some expected and unexpected results.

And finally, if you missed the best story of 2017 so far, I share it with you here now:

Four-year-old Daliyah Marie Arana’s being “Librarian for the Day” for the Library of Congress.

As I said, best story of the year so far. 

TEDMED at Home

17 Apr

My workplace is live streaming the terrific annual event, TEDMED, this week. Many of the talks eventually become available through the TED website, so if you’re not able to watch now, do check in at a later date to see what gets posted. In particular, you might want to watch Larry Smarr describe his hard-to-imagine quest for gathering, tracking, and analyzing every kind of microbe living in his colon. Perhaps it sounds a bit dry, but trust me, it was a fascinating talk.

If you’re interested in mobile health, don’t miss Deborah Estrin’s talk on the work she is doing at Cornell towards an “Open mHealth” movement. Assessing our “social pulse,” she argues, can tell as much about our health as anything, and doing such a thing is becoming more and more possible with the advent of so many tools and apps available for mobile devices. (Visit Small Data to use/see your own small data.)

EVERY academic librarian, along with every single person who utilizes the resources of an academic library, needs to watch Elizabeth Marincola speak on, “What happens when science, money, and freedom of information collide?”  Marincola is a business person and a publisher… and a VERY strong advocate for making published scientific research available to all. “I don’t know anyone who believes that the mission of science is the comodification of data.” GREAT quote!

Max Little spoke of the role of applied mathematics and “prediction competitions” to drive science forward. Amy Abernathy proposes the wonderful idea of Info Data Drives, based on the model of blood drives, where individuals can donate their health data to build the kind of data sets needed to solve complex medical mysteries. Mick Cornett, the mayor of Oklahoma City, talked about how his city redesigned itself for people, as opposed to automobiles, and in doing so went from being on the list of “Most Obese Cities” to “Most Fit Cities” in a matter of a couple of years. Even more, building infrastructure that focuses on community, recreation, and other healthy social activities has made Oklahoma City a destination for many young adults and families, bringing with them the talent and skills needed to keep a city thriving. Sally Okun is the first nurse to grace the TEDMED stage and, not surprisingly to me, she was the one speaker so far who hit home the importance of listening to what patients say. She’s involved in some really interesting contextual language research, trying to develop a lexicon of patient language. I’ve made a note to follow-up on it.

The morning also brought a couple of terrific interludes; Jill Sobule (I loved her already, but now that I know she’s the TEDMED troubadour…) sang a song with fantastic lyrics that I’m afraid I can’t provide here on this family/work-oriented blog. Let’s just say, in the wake of bombs going off at the Boston Marathon, politicians arguing over gun control, and every eye focused on immigration reform, Sobule gives me a nice little refrain to sing over and over again in my head (“When they say, ‘We want our America back’…). Thank you, Jill. And if you’ve never seen Zubin Damania’s alter ego, “ZDoggMD” and his PSAs for different health issues, well you’ve just never seen an internist rapper before, have you? Check him out!

Finally, our very own Myrna Morales, Technology Coordinator for the NN/LM NER, worked with the students organizing today’s streaming to make it possible for a few of us to give our own TED Talks during the breaks! I’m really pleased and honored to work in a library where six people stepped up to the plate and spoke. I captured them on video and after editing (and if I receive permission from the individual speakers), I’ll share their talks on my blog. In the meantime, here is my own and very first TED Talk. Not quite ready for the big leagues, but it was awfully fun to do. Hope you enjoy it!