Tag Archives: data management

Share and Share Alike

17 Jan

PMC ArticleBefore I even get started with this week’s post, let me first draw your attention to this little bit of awesomeness, after all, it’s not every day that you (well, at least I) get to see yourself in print. I feel that I just have to do a little shout out. Plus, my poetic welcome to the attendees of MLA 2013 may well be the most valuable legacy that I ever leave to my profession. 

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Back to the reality of our work at hand, I had a few experiences this week that got me thinking about where and/or how dissemination of knowledge fits into our role as knowledge and information management professionals. The first of these occurred during the weekly meeting of the mammography study team. This week’s meeting was different in that it involved bringing together not only the primary members of the team, but also the players from the technology aspects of it, specifically the programmers from Claricode, and the IT people from Fallon Insurance Company and Reliant Health Care. These individuals have played a key role in the study related to developing the software platform used to collect telephone interview data (the CATI system), pulling necessary data from insurance and health records, and coordinating the disparate data sources into a tracking database that can, ultimately, provide the data for analysis. It’s been no small task from the very beginning of the project. In fact, the very issues raised in the bringing together of these people to accomplish the necessary technological aspects of the study are the ones that led to Aim 2 of the informationist supplement grant that brought me to the study:

Aim 2: Assist investigators in identifying and reporting information technology issues that have arisen in the implementation of the study that may be of use to others.

Initially, we thought that the deliverable for Aim 2 would be a white paper; an outline of the different issues, along with references to the literature, that could be shared with both the clinical research and IT communities, with hopes that the information would prove helpful to those who sought to do this type of collaborative work in the future. In short, the team believes that they have learned some things, including some mistakes that others might want to avoid. However, as we began talking about the topic and I began searching the literature for relevant articles, I found that not much existed that touched on just what we were trying to articulate. This fact led us to discuss whether or not a white paper was the best way to go with this topic/issue. Perhaps a symposium, a meeting that could actually bring the different players – clinicians, researchers, computer programmers, software developers, etc. – together to share insights and brainstorm ideas for how we could all work better together. But this thought got us to wondering more about just who we’d invite. Who are the real stakeholders in this situation? Who would find this interesting? Do clinicians want to talk to developers? Do programmers have the faintest interest in problem-solving with medical researchers? We weren’t sure, so we decided the best way to begin would be to simply bring all of us together – all of the people who have worked on this project for the past 5 years – and see if this group, at least, could identify topics, issues, and/or projects in this area worth moving forward on. 

In short, we found out that the answer is YES!

That’s good news. We could easily list off any number of “lessons learned” and “things to consider next time.” Everyone agreed that we have knowledge that can be useful to others. Excellent!

Now let me tell you about a couple of other experiences of the week before I tie them all together. This one happened yesterday when a group of us from my library were taking part in a webinar for the current eScience Institute run by Duraspace, the Council on Information Library Resources, and the Digital Library Federation. The Institute is a continuation of a project funded by the Association of Research Libraries that began several years ago. It’s objective is to help research libraries assess the data and/or cyber-infrastructure needs of their universities, mostly through conducting environmental scans, surveys, needs assessments, and the like. It involves interviewing key stakeholders in each library’s respective institution, thus providing a better picture and/or road map for planning library services in the areas associated with data management. Our cohort consists of about 25 other libraries. Combined with the previous years, approximately 120 libraries have taken part in this initiative.

As we listened in, someone in our group asked, “Do we share our findings with the other libraries?” Our leader typed the question into the chat box and the answer we received was along the lines of “You can, if you wish.” Now this is, to me, well… well, it’s strange. I’ll just say it. Strange. It’s strange because of every profession on the planet, which one is best associated with sharing? I’m thinking that it’s us. Libraries. Librarians. Librarianship. We are founded on the principle of sharing. At least in part. One of the biggest forces driving the movement of libraries into data management is the concept (for some, mandates) of data sharing. We, of all people, know the benefits of sharing. That’s why we’re advocates here. So to me, it’s kind of strange to find a whole bunch of libraries involved in a project where all of the information, data, and most importantly, knowledge discovered in the process of going through these exercises isn’t being readily shared. Why? How can this be? Maybe I just misunderstood.

Also yesterday, my library’s journal club met and discussed the article, “The New Medical Library Association Research Agenda: Final Results from a Three-Phase Delphi Study,” (Eldredge, Ascher, Holmes, and Harris). The paper reports on the process undertaken by the researchers to identify the leading research questions in the field of medical librarianship as they were identified by members of MLA’s Research Section, as well as leadership within different levels of the organization. As we looked over and discussed the list of questions in the article, many people noted that they remain the same questions that we’ve been asking for years, e.g. questions of the value of librarians, the value of libraries, the information needs of our patron groups, etc. The comment was also made, both in our group’s discussion and in the paper, that some of these questions may well have been answered already. To this thought I commented, “Well evidently not well enough, if those with vested interests and notable involvement in our profession still have them.” Or maybe less cynically, my comment could have been, “Perhaps so, but if this is the case, we haven’t done a very good job of sharing that knowledge, because we still have the questions.”

All of this leads me back to a bigger question that’s become quite clear to me of late as I continue to observe or be a part of these type experiences, i.e. How do we share what we know with others?

To me, this is a HUGE need in the world of knowledge and information management where librarians can help. Quite honestly, I’m not clear on all of the ways that we can help, but I absolutely believe that there is a place for us here. We are experts in gathering and organizing information. We have the skills that allow us to make that information accessible. We know how to evaluate materials, weed out junk, and build strong collections (notice how I never use a certain trendy word in describing these activities). These are all foundations to sharing information and, ultimately, knowledge.

However, it’s the next step where we need to bring our own skills up to the task. It’s the next step that’s woefully missing in the whole “knowledge sharing” world. To me, that step is dissemination. Better put, effective dissemination. That is where the sharing of knowledge happens and I’m not sure that anyone is doing the best job at it today.

Researchers within their own institutions don’t know what their colleagues are doing; what their colleagues are discovering. How can we help them with this? They want to know. They tell us this. But so far nobody has been able to create the resources or the tools or the environment to make this happen, at least not in a seamless, integrated way. Libraries have tried, but as one of our Library Fellows said to me, “We have a ‘Field of Dreams’ mentality. We think that if we just build the resource, everyone will use it.” I agree. We are quite capable of building resource guides and special collections, but unless people use them, the information they contain just sits there. The knowledge that they are capable of spreading is trapped. A “Help Manual” is of no help when no one reads it.

I said to that same Fellow, “I have really no idea how to solve the problem yet, but that’s always the first step. Recognizing it.” But I do really believe that if we can become adept at whatever all of the skills are that we need to build and implement resources that fit into the workflows and the paths and the processes of our patrons, we will have discovered an entire new area of work for our profession. Part behaviorist, part ethnographer, part programmer, part librarian… likely a combination of these and more. It’s no simple problem to solve, but it’s an awfully big key to sharing and as we have long been the leaders in that act, I see no reason why we should stop now. 

*Interested in thinking about this more? Here’s a podcast and a paper that I’ve assigned as the material for the February journal club in my library. 

 

Two and Two and Two: Making Connections

24 Oct

Two meetings with two principal investigators about two grant proposals over two days lead me to two observations and thoughts about the state of our profession and the work that we do:

1. Is the library a silo, too?

We speak a good bit in the profession about how often those that we serve, our patrons, live and work in silos. Scientists do research in specific areas. Departments treat diseases within a specialized field. Administrators make decisions within the context of the the top level that they know best. It’s very common. And it makes us quite frustrated because the reality of the world is that we rarely function in a world that doesn’t (or couldn’t) benefit from other areas, if only we knew about them. However, “Nobody knows what I do!” is a common cry not just from librarians, but across the board. Is this perhaps a glimpse that we, like our patrons, are living in a silo that we’ve created for ourselves? 

Yesterday, I sat down with a researcher to do some work on the proposal that we’re submitting for the next round of informationist grants from the National Library of Medicine. It is an absolutely fantastic project and each time that I come away from talking with Dr. Kennedy, I can’t help but think how refreshing it is to speak with a researcher who knows as much, no, more than I do, around the issues related to data sharing. Turns out that he’s internationally known as a proponent of data sharing in his field (neuroimaging), leading projects and initiatives and working groups and all sorts of attempts at advocating among his peers for the necessity of this practice. It is by chance – pure chance – that our paths crossed and that this crossing led us to work on the grant proposal together. You see, he knew of the RFP for the informationist supplement grants because of his connections to colleagues at the National Library of Medicine. I happened to give a talk at one of his lab’s meetings awhile back on an unrelated topic and he noted that the title on my signature line includes “informationist.” Thus, he asked me what this meant, what I did, what I was doing related to the supplement awards, and if I’d be interested in helping him on a project idea that he had. This is how we came to yesterday.

What I want to point out, however, is that Dr. Kennedy came across this information with no connection to the library. He learned of it from a colleague at the National Library of Medicine, yet that colleague, evidently, didn’t think to point him to his library as a place to find an informationist. 

Are you following me?

There’s a chat happening on the MEDLIB-l listserv today (and other days and in other circles of our profession, too, of course) regarding our name, i.e. should we incorporate “knowledge” into our job titles, use it in some form instead of “library” to describe our workplace, etc. I’m not going to get into that discussion here, but I bring it up because a consistent thread in these discussions is that if our patrons don’t know the value of the library, then we are evidently doing something wrong in our work.

To this I say, “Yes and no.” 

Yes, sometimes we haven’t done the best job at getting out and letting people know how we can build partnerships, collaborate on research projects, embed ourselves in curriculum, teach classes on a variety of relevant subjects, and much more. Our history is as a passive profession. For years and years and years we were able to meet our patrons here, in the library. They had to come to us to use our resources. Once here, they made the association that librarians were important because libraries had resources. But those days have been gone for decades now and we haven’t always been the best at getting out and helping people associate us less with the library and more with our skills. WE are the resource that we really need to save now, not the library or the journal collections or the subscription to UpToDate. We cost the administration more than those other resources, thus we best be able to prove that we are the resource worth keeping the next time the forced budget cuts come along.

But I also say no to the belief that if people don’t know our value, we’re doing something wrong. I’ve done a ton of right things over the past year and a half as an embedded informationist that have led me to all sorts of fantastic new opportunities, yet still it’s only by chance that I discover someone right here on my very campus who has been working on and advocating for many of the same things we’ve been talking about here in the Library. We work in different worlds, all of us, and despite the forward strides and promise of networked science, it remains so darned impossible to be able to make all of the connections that we could make that would ultimately lead to better work, e.g. science, medicine, information management. Work that would prove our value.

To me, that realization really hit home when yesterday when I thought about how someone who works for the National Library of Medicine, the funding agency behind these informationist grants (the National LIBRARY of Medicine) didn’t associate the library with those awards. I don’t say that out of any place of judgment, either. Well… maybe a little, but the truth is that there’s no point in judging and/or blaming and/or pointing fingers. It is simply our reality. We all live and work in some degree of a silo, but if we want to be associated with value, we need to be valuable. Visible and valuable. Both.

2. “You have a unique skill that only a handful of people on this campus have.”

I was told this today by another principal investigator as we discussed the rewriting of another grant proposal. The skill she refers to is my knowledge of how to use and leverage social media for all sorts of positive things. Her point was that when you have something that few others have, you’ve got to use it. Social media is trendy in medical research today, but few medical researchers actually use social media. They want the money to do the research, yet don’t have the expertise in the products to know how to use them effectively. Thus, when you do have the expertise, you have value. Research teams need you on their team. This is terrific!

Yet I felt myself hesitating at the thought that as a librarian, the skill I would bring to a research team lies in social media. Is that a librarian skill? As we talked though, the researcher described to me how knowing the social media tools and the social media landscape affords you the skill of knowing better how to collect and manage the data that’s generated from the use of these tools. Novices don’t have that. And data management… now THAT is a skill that the library is clamoring to get into. But even for me and my “out of the library box” thinking, making this connection took a few minutes. Even for me! 

It surprised me, but I wonder if as we break out of our silos and work closely with others, perhaps one of the things that gets blurry is the answer to the question, “Who knows what?” What are librarians supposed to know? What are researchers supposed to know? What do doctors know? And who does what? I think that it’s this vagueness that makes us argue over (or more politely, discuss) what we call ourselves, what services we provide, and what our value really is. Silos and walls keep us separated, but they also keep us neat and orderly. We say that they need to go. Are we ready for the flood of uncertainty that all the mixing-up to come will bring? 

National Preparedness Month was last month, but you can still celebrate it today.

life-preserver

 

Whad’ya Know? (Not Much)

26 Jul

mind the gapYou may or may not be a fan of Michael Feldman’s radio show, “Whad’ya Know?” Me, I make more time for “Wait, Wait… Don’t Tell Me!” and “A Prairie Home Companion,” but despite the fact that I rarely listen to “Whad’ya Know?,” I can still hear the audience’s retort when the show begins with the announcer asking the eponymous question… NOT MUCH!

I thought of this line as I read a couple of pieces on data management this week, both written by colleagues; Dorothea Salo’s Library Journal article, Data Curation’s Dirty Little Secret, and Jen Ferguson’s response to it, Dirty Little Secrets, that was posted on the e-Science Community Blog. Salo’s original piece argues that the need for discipline knowledge is secondary, if anything, when it comes to the practice of managing research data. Ferguson, a molecular biologist turned librarian, agrees. I believe both authors make some excellent and valid points and don’t want to spend my post arguing against them. I think that their pieces are worth reading, considering, and adding to the arsenal of experience and opinion that continues to grow in regards to the discussion.

I do, however, want to have a think on the emphasis placed on both data management skills and subject knowledge that informationists need to have; at least so far as “informationist” is defined by the National Library of Medicine’s Administrative Supplement Grants for these services and/or this role. (As an aside, I was in a meeting at my church last night with a wonderful British woman who kept saying, “Let’s have a think on this.” I’ve decided that it’s my new favorite phrase.) In the latest announcement for the informationist grants, the funding purpose is again defined as:

These administrative supplements provide funds to supported research and center grants in order to enhance the storage, organization, management and use of electronic research data through the involvement of informationists, also known as in-context information specialists.

The purposes of this administrative supplement program are (1) to enhance collaborative, multi-disciplinary basic and clinical research by integrating an information specialist into the research team in order to improve the capture, storage, organization, management, integration, presentation and dissemination of biomedical research data; and (2) to assess and document the value and impact of the informationist’s participation.

It seems fairly clear to me that this role of managing data is what some feel is the most important new role for librarians to undertake. If librarians were the audience for “Whad’ya Know?”, I can hear our cry to the announcer being, “DATA!” Personally, I’m not exactly sure how true this rings, but it’s for sure the shout that we want to be making. The informationist grants aren’t aimed to support other, more traditional, librarian services, but instead, data services.

And interestingly, the National Library of Medicine does believe that disciplinary knowledge is a characteristic of an informationist (see background information here).

Here’s my take on all of this…

Does my background in exercise physiology help me in my work as an embedded librarian? You betcha! Why? Because most of the studies and teams that I’m supporting involve research around the areas of prevention, intervention, and changing health behaviors. It’s not my discipline background that necessarily helps me undertake the data management aspects of this role (that’s library and information science expertise), but it is extremely valuable in my being able to become fully integrated into the research team. Maybe this is due to nothing much more than what Jen describes in her post as “a little instant ‘cred'” upon entering the team. Credibility gets you a seat at the table and I also think that it gives you confidence that you belong there. It helps to see yourself less as supporting cast and more as a member of an ensemble.

I’m not arguing against what Dorothea and Jen state, for I don’t necessarily disagree. I do believe that you can provide a level of data management and support without needing to know much of anything related to the data itself. But still I’m left wondering, based upon the accepted definition of an informationist (by NLM and the literature), why the call for the discipline knowledge for this role OR why the emphasis upon data services above everything else we can provide? Why do we believe that data management is the most valuable thing that we can bring to a research team? Why do we see it as the role that we can fill above other roles? Is this really the way we’ll find success?

The jury is still out, of course. Part of my time as an informationist this go ’round involves evaluating the value of the role. Maybe in time we’ll have a better grasp on the skills that are most valuable to a team. I have a feeling that there will never be a truly clear answer, though. I think so much of the success of our individual roles, as well as the overall team, is dependent upon a lot of factors and skills that are not necessarily learned in school – at least not now. Fortunately, a movement is afoot to shed light on the importance of these soft skills, people skills, personal dynamics, and the like that are increasingly valued in a cross-disciplinary research world.

Time and experience will tell where we best fit and, hopefully, what we do best once we get there.