The title of this post can be found written in large, bold letters in the notes I took during a meeting on Tuesday. “LET’S DECIDE!” It followed the side comment (my notes from any meeting are filled with side comments and/or digressions), “Basically, we can facilitate this work and see that as our role or keep doing our own thing.” I realize that it’s not truly an “either/or” situation, but…
Maybe I should offer a little background, first.
Initially, Aim 2 in the proposal for my work as an informationist on the mammography study was this:
Aim 2: Assist investigators in identifying and reporting information technology issues that have arisen in the implementation of the study that may be of use to others.
After spending a great deal of time searching the literature in fields from information technology to medical informatics to team science (or simply teamwork), I realized that not much existed that fit the issues that they’d encountered. Further, I wasn’t convinced that writing an article and/or white paper on the topic was the place to start in terms of reporting their experience. I thought that perhaps bringing people together, i.e. the different stakeholders, to talk about the issues, problems, lessons learned, etc. that occur when IT folks and a research team come together to work on a project. I felt that such a discussion would yield a lot of valuable information that could then, somehow, be collected, organized, and disseminated in a useful manner. After a lot of talk and brainstorming within the team, we all agreed that this seemed a good path to take.
Making a long story short, this idea took hold, evolved, grew, and a couple of weeks ago, took the form of a mini-symposium that was part of the annual research retreat for our Center for Clinical and Translational Science. The program, entitled, “Data Acquisition, Data Management, and Subject Tracking in Clinical and Translational Research: Seeking Solutions to Persistent Challenges,” brought together the researchers from the mammography study, two faculty members from our Department of Quantitative Health Sciences, a biostatistician from the University of Massachusetts, Lowell, and a representative from our Information Services department. My role now is to pull all of the content from the symposium, along with other useful resources, and make it available online for the benefit of our research community.
This is all a really happy story for me in that I’ve been able to help facilitate and see something come together that we have been talking about in my library for a number of years now. Finally… FINALLY … people are starting to talk about issues around data. For too long, the only folks that I’ve heard talking about managing data are librarians. And frustratingly, we’ve mostly been talking among ourselves. But over the past months, I’ve been able to watch people that we’ve been wanting to reach addressing the issue. And best of all, the different players are talking to one another and not just among themselves.
So why the frustrating digression in my notes from Tuesday? Well, it’s because in my position, I can see several things happening. First, I can see several different camps, including the library, trying to stake their claim on one or another aspect in the data management services suite. And there’s a lot of overlap.
Secondly, there’s a lot of the feeling of “we’re the experts, so we should be the ones to do this.” Going along with this is also a lack of awareness and/or understanding of what each stakeholder really is expert in. For example, I might think that the people in Information Services ought to address issues around data storage and security. This is true, of course, but it leaves out the expertise that some in that department have around the proper ways to build databases and thus best practices in file structures and naming conventions and other things that might make me want to say, “Hey! That’s my area of expertise, not yours.” Similarly, many libraries developing data management services are focusing a great deal on providing data management planning in grant applications, but if you asked my colleagues in Quantitative Health Sciences, they’d say, “That’s what we do. Why are you saying it’s your role?”
Lastly, despite the success of the mini-symposium, there’s still an awful lot of “talking amongst ourselves” going on. I see this more easily, and thus get a little frustrated at times, because I have my foot in several different areas where I’m hearing the same message. In other words, despite the success of bringing people together for the mini-symposium, there’s still a lot of room for improving how well we communicate and coordinate our efforts, not only campus-wide, but even within my library. So when I wrote “LET’S DECIDE!” it was my reaction to what I see as a really big need that we can fill. There is a huge need for someone to fix the broken communication system, help eliminate some of the duplication of efforts, and facilitate the development of services around data within my institution. And I believe that someone is me and my colleagues in the library.
One of the characteristics of the library that was lost when we brought our resources to the researchers was our place as the hub of a lot of academic activity. People used to come to our physical library and here the different worlds of campus would collide. Researchers and faculty members and clinicians were forcibly less isolated in labs or offices. They literally ran into one another and likely had a bigger picture of things that were going on, simply through the interactions. At the same time, librarians were more easily able to know a lot of what was going on, too. We had a front row seat for all of the collisions. What I’ve found, as I got out of the library and started working on research teams, is that by going to the people that used to come to us, I’m bringing that lost quality back to life. While it can be incredibly frustrating to observe different groups addressing the same issues, each unaware of what the other is up to, the fact is that I can make them aware.
The mammography study team didn’t know that a team in the library has been working and working and working towards a goal of teaching good data management practices to the students, but as I’m a member of both teams, I did. So, when the study team made a suggestion that we recreate the symposium via a webinar series, archive it, and make it available to the students as part of their curriculum, I immediately chimed in, “Wait! Let me tell you what we’ve been working on.” A similar thing happened with the data management group in Quantitative Health Sciences. And now, we have a meeting scheduled for next month where we will bring these groups together – the research team, the QHS group, IS, and the library’s data services group.
To me, being able to facilitate these gatherings is one of the most rewarding parts of this informationist work. It’s a great role for librarians to take in the area of data management. As I wrote a few posts back, it’s the networking aspect of eScience and a place where we can put our skills to good use. The library itself used to bring people together. Today, librarians do.