Vacation, All I Ever Wanted

31 Jul

Nothing says vacation time like a water skiing squirrel!

Go, Twiggy, Go!!

I’ll be back writing mid-August. Until then…

Fancy Doodles

23 Jul

One of my favorite parts of my still relatively new job as an evaluator is being able to tell the stories of our programs not only in words, but also in pictures. Regular readers of my blog know how much I enjoy and value sketching, doodling, and drawing as part of my work process, and I’ve enjoyed sharing my sketchnotes over the past few years here on my blog, but my new role allows me to create infograms for each newsletter produced by the UMass Center for Clinical and Translational Science. I thought I’d share some here.

When I had to report on the current work of our funded clinical scholars, I decided to highlight how a small group of people (6) can lead to much larger groups and connections and ultimately, outputs such as subsequent funding and peer-reviewed papers. Turning those facts into pictures, I came up with this:

Slide1

For those curious, I used PowerPoint to draw this graphic. The dollar signs and presentation screens are clip art, but the rest I was able to draw by hand. You can draw pretty much anything with triangles and rectangles and circles. :)

Next, I had to report on the progress of another group of funded researchers – our Pilot Project Program Awardees. I took the information given to me via lengthy written reports and turned it into this graphic to show the importance and value of Team Science. For this one, I tested out the infographic site, Easel.ly. It allows you to do many things via their free version.

PPPSummaryUpdateSpring2015

Most recently, the Principal Investigator for our Center wanted to know about the funding of these Pilot Projects since we began doing so, back in 2007. What could we say about this program, since we initiated it? I decided one thing worth evaluating was our return on investment. Since 2007, the UMCCTS has awarded around $5 million to fund research that promotes collaboration between basic science and clinical researchers, provides seed funding for ideas to grow, and advances translational science. What’s been the return on that investment? Turning back to PowerPoint, I created this graphic:

PPP Investment

It’s a challenge to collect and analyze the data behind these images, but in many ways the bigger challenge is to figure out which story is the one to tell and how best to tell it. It’s a skill of an accomplished evaluator, something that I can’t really call myself only 8 months into the job, but I’m happy to report that it’s both interesting and rewarding to work towards such a goal.

Listen Up!

17 Jul

podcastI need to offer up a HUGE thanks to my friend and colleague, Kate Thornhill, Research and Instruction Librarian for Digital Scholarship at Lesley University’s Moriarty Library in Cambridge, MA, for recently turning me onto the terrific podcast, Lost in the Stacks. From WREK, the student-run radio station at Georgia Tech University in Atlanta, the show is hosted by Charlie Bennett and Ameet Doshi, along with Anthony Nguyen, Fred Rascoe, Lizzy Rolando, and Wendy Hagenmaier. All librarians at Georgia Tech University in Atlanta, they bring an hour-long program offering really interesting interviews with librarians focusing on all sorts of cool themes. But it doesn’t end there. In between the interviews and/or segments, they play some pretty groovy tunes, an eclectic mix of great songs. I just LOVE it!

I imagine that Kate sent me the info on this show because one of their most recent programs, Once a Librarian, Always a Librarian, offered up interviews with Elizabeth Keathley, Chief Officer and Digital Asset Manager at Atlanta Metadata Authority and author of Digital Asset Management, and Nisa Asokan, Editor at WebMD and Co-Owner, Manager of the music production company, Tight Bros Network. Being one who easily falls into the “Once a Librarian, Always a Librarian” career category, I appreciated so much the thoughts, ideas, and insights shared in this episode.

The first segment begins, “One thing you might notice about the job titles for both of our guests is that they do not have the word ‘librarian’ in them, however, both have degrees in library science.” I could offer you a nice summary of what Elizabeth and Nisa had to say about their jobs, their work, their titles, and their salaries, but I’m not going to do that. Instead, I’m going to tell you to seek it out and listen. It’s a wonderfully optimistic – and very true – view of a profession that opens so many doors to so many fascinating careers, if one wants them.

With other episodes in their archive like Beach Libraries, The DC Punk Archive, and Avoiding Dead Air, you can bet that Lost in the Stacks is going to easily find its place on my Friday afternoon playlist from now on. Thanks, Kate! And thanks to those bringing us this show.

Summer Reading Time

1 Jul

My favorite advice columnist, Amy Dickinson, recently posted the question on her Facebook page, “Do you have a favorite summer read? Want to recommend one?” But of course I do! This librarian by any other name can always offer up advice on a good book or two. Here are a few on my summer reading list:

Sue_Grafton_-_W_Is_For_Wasted

I actually just finished “W” yesterday. I have read Sue Grafton’s, Kinsey Millhone’s alphabet series from A to W, and will surely make it to Z (and then have a good, long cry once I finish it and think about the series ending). I love these books – the characters, the settings, the mysteries. Perhaps what I like most about them, though, is that Kinsey came to life in “A is for Alibi,” all the way back in 1982. While we’ve aged to 2015, Grafton chose to let Kinsey age at the speed of the stories. In other words, Kinsey is still in the 80s, still doing private detective work using index cards, a typewriter, and pay phones – AND the occasional microfilm/microfiche and reference librarian. I love it! “X” is coming out in August. My summer reading will be bookended by Kinsey, thanks to Sue Grafton!

penguinAlong with a good murder mystery, I’ve also been reading Yochai Benkler’s, The Penguin and the Leviathan. This title was referenced in an article that I was reading about team science and Clinical Translational Science Centers. It’s thesis, that cooperation between competing parties leads to better results than self-interest, intrigued me and just a few chapters into it, my interest has been met. I’m enjoying it.

proust-195x300

I also recently came across a reference to Maryanne Wolf’s, Proust and the Squid. Anyone who’s read my blog and the books that I mention on it knows of my fascination with neuroscience, the effects of today’s technology and media on our brains, and the habit of reading. How could I not read this? It’s up next, after I finish the penguin tale.

rebanksI began James Rebanks’ memoir, The Shepherd’s Life, just last night. I’ll be finished with it before the weekend. It is beautiful! Beautiful writing, beautiful landscape, beautiful living. A bonus, if you enjoy his tales of life with the sheep, you can follow Rebanks on Twitter, @herdyshepherd1.

creativity-challenge

I just came across Tanner Christensen’s, The Creativity Challenge, this morning. I can’t resist books like this, i.e. ones that offer up new information about creativity along with a daily activity to spur on my personal quest to be more creative. No doubt, this book will be in my possession within days.

Jacket Board - Analytics Press

Finally, the 2nd edition of Stephen Few’s, Show Me the Numbers has lived on my work desk since June. It’s a summer companion. Few is the founder of Perceptual Edge, a consulting firm dedicated to information design, knowledge management, and visual communication. He has authored seminal papers and books on the subjects, this particular book being among them. It’s a terrific reference for me and the work that I do, and I imagine of interest and help to more than a few of my readers, too.

That’s it for my reading this summer. What are you picking up? Feel free to share in the comments section.

Translating “Translational”

16 Jun

UMCCTS LogoYesterday marked my six month anniversary working for the UMass Center for Clinical and Translational Science. It’s been six months of challenges and opportunities, lots of learning and adjustments, and many experiences that I both expected and didn’t. All in all, a good, positive change.

Since moving from the UMass Med School’s library to the UMCCTS, lots of people have asked me, “What are you doing now?” Truth be told, many of these same people had no idea what I was doing before, but at least they think that they know what librarians do and I let it go at that. But since becoming an evaluator for the UMCCTS, I find I have to explain two concepts; (1) the role of an evaluator and (2) translational science.

Last night, I attended Science Cafe Woo, a monthly gathering of folks in Worcester where local scientists can talk to the public about what they research. I’ve written about Science Cafe Woo here a couple of times before (An Infectious Dialogue; Sustainability: It Mean’s More than “Tit for Tat”) because it’s always a highlight of my month in terms of learning interesting science, plus I’m a strong advocate for science communication and the promotion of scientific literacy. As noted in an excellent article by Boston Globe reporter, Sacha Pfeiffer, over the past decades, government funding for scientific research and development has steadily fallen from 9.1% in the late 1960s to a paltry 3.6% today. Efforts like Science Cafe Woo, the Science Cafe movement overall, and programs like the one at my own institution that help scientists deliver a comprehensible message to different stakeholders, from corporate donors to the public tax payer, are essential if we are to be successful in our efforts to advance science, eradicate diseases, and reach our fullest potential as human beings.

And thus, there I was at last night’s Science Cafe Woo, ready to learn about the work of Glenn Gaudette, PhD, from Worcester Polytechnic Institute. Dr. Gaudette’s talk entitled, How Science Can Mend a Broken Heart, was a fascinating mini-lecture on the anatomy of the heart, cardiology, pluripotent stem cells, and … TRANSLATIONAL SCIENCE. It’s the latter that made me say to my spouse when I got home, “I wish everyone who wonders what that term, translational science, means had been at Science Cafe tonight.”

Dr. Gaudette talked about his research in the Myocardial Regeneration Lab at WPI. There, he and his students discover ways to get stem cells to become myocardial (heart) cells and then how to implant these cells into damaged heart muscle, encouraging new growth and healing that without such a treatment, is impossible. In other words, when a person suffers a heart attack, some portion of their heart muscle is damaged. It eventually scars over and the heart as a whole is less efficient in its business of pumping blood throughout the body. Myocardial muscle cells don’t regenerate on their own, thus the damage remains. The theory behind Dr. Gaudette’s work, then, is if we can learn how to induce the growth of new cells in the heart, we can help a damaged heart heal, not just scar.

The exercise physiologist in me LOVED this talk. I’ve studied the heart and cardiac rehabilitation enough to understand how monumental such a new treatment could be for the millions of Americans who suffer from heart disease. It’s such a cool idea and if/when it reaches its fullest potential, becoming a clinical procedure, it will be truly amazing.

And this, in a nutshell, is translational science:

  • Dr. Gaudette and his colleagues have an idea; if we can get stem cells to become myocardial cells and deliver them into damaged heart muscle, they’ll grow into new, healthy heart muscle.
  • They work in their respective labs to figure out the problems; growing the cells, delivering the cells to the tissue, seeing if the delivered cells actually grow into new cells.
  • They come up with a novel concept to more effectively get the cells to the heart muscle; the VitaSuture.
  • They go out and talk about their ideas and findings to investors, funding agencies, and the like, trying to secure the money needed to manufacture and test this product. (There is no money in academia.)
  • They talk to regulatory agencies like the FDA about their idea, about their product, and about how to actually test it in human beings.
  • They get squashed. Stem cells are SUCH a red flag, they’re told, especially when you’re talking about putting them on a person’s heart.
  • They get back up. They think of ways to lower the risk. They make other proposals. How about regenerating ligaments?
  • They test this idea out on animals and find some success.
  • They go back to the regulatory agency with their new proposal.
  • Squashed again.
  • They get back up again. Other ideas. Even less risky.
  • And on it goes… (Read a TERRIFIC piece on this process in WPI’s spring issue of Research.)

That, my readers, is translational science. It’s getting from an idea, to success in non-human models, to successful testing in humans, to what ultimately becomes clinical practice. Translational science centers, like UMCCTS, exist to help identify and remove the barriers in this lengthy, winding, often inefficient process.

And my job … it’s to evaluate the different programs and core research centers we sponsor, so that we can determine how well we’re doing towards bringing down some of those barriers and hurdles. It’s also to disseminate the findings and the work of translational scientists at UMMS, so that our stakeholders better know and understand what we’re doing.

This morning when I came into work and told my boss all about last night’s talk, he immediately asked, “Is he working with anyone here?” and we began to talk about clinical researchers doing science here that might collaborate really well with Dr. Gaudette and his colleagues across town. Surely, there’s some follow-up to be done.

To me, these are the most interesting, exciting, and fulfilling aspects about working in a scientific research environment. There are just so many fascinating stories and I get to hear them, share them, and sometimes be part of them. Translating translation. Everyone should be so fortunate in his or her work.

Thanks to Science Cafe Woo for continuing to encourage scientists to talk to the public about their work, to Dr. Gaudette and his colleagues and students at WPI for the work they’re doing, and to the UMCCTS and all of our members who keep striving to bring the breakthroughs of science and medicine to the world.

The Choices We Make

4 Jun

My blog post for this week is sitting over there on the NAHSL blog. I hope you’ll click on the link below and visit. My thanks, again, to NAHSL for offering financial support to help me attend the annual meeting of the Medical Library Association this year.

The Choices We Make

Choose Wisely

Choose Wisely

A Sheep in Sheep’s Clothing

28 May

[Alternate Title: The Sheep that Wags the Wolf’s Tail]

Photo Credit:  petsadviser.com

Photo Credit: petsadviser.com

A few years back, I made a deal with a friend to run the Chicago Marathon. I’d run several marathons previously, but none in a number of years. I was nowhere near the shape I wanted to be in when I made the deal and as both my friend and I were trying to be healthy, it was a win-win situation. At least it seemed that way. I trained in the winter, indoors on the treadmill. Once spring came, I moved outside. Week after week, I slogged through, never feeling like I was gaining any stamina, losing any weight, or getting any healthier. As summer came along and I started to stretch out my miles, I found myself getting pretty sick after running. I couldn’t eat anything without having serious digestive troubles. It got to the point that after running I’d stick with a smoothie and not much else. Even that didn’t always go well. I’d never had this experience in past training and kept chalking it up to being out of shape.

Then, one Friday evening I went for a 12 mile run – struggling through it as my gut rebelled against me. I finally finished, stopped by the 7-11 for a Gatorade, and drove home. After showering, I had a smoothie and settled in to watch the Red Sox. Next thing I knew, I was on the floor of my bathroom and next after that in an ambulance to the emergency room. I’d never been in an ambulance before – and that’s about the only positive I can think of regarding the experience.

After a night in the ER, tests that revealed nothing much, trips to my doc and a couple of specialists, the vascular surgeon told me that he suspected I had celiac artery compression syndrome (or median arcuate ligament syndrome). He also said, as I described my symptoms related to running with him, that he’d never heard of it being associated with exercise.

Being the medical librarian that I am, I set about searching PubMed (now that I knew some terms to search) to learn about what was going on inside of me. Mostly, I was looking for something that would link my training with this syndrome. Lo and behold, I found one. One. That was it. One case study about one individual – an elite runner who’d suffered something similar to what I was experiencing. Granted, I was hardly “elite” in my running, but the symptoms and situations described for this runner were just what kept happening to me.

I promptly sent a copy of the article to my surgeon and then, a couple of weeks later when I was wheeled into the operating room for an arteriogram to confirm his diagnosis, he said to everyone in the room, “If you have any questions, ask Sally. She’s read more about this than you have.” (Though fortunately not more than my surgeon!)

This is a long, round-about story to demonstrate a point – when it comes to evidence, a case study that resonates with you, the individual, is worth as much as any randomized control trial.

Evidence-based practice is THE term in medicine today. As noted by Stewart Donaldson, Christina Christie, and Melvin Mark in the introduction to their book, “What Counts as Credible Evidence in Applied Research and Evaluation Practice?” we live in an evidence-based society. Evidence-based medicine, evidence-based mental health, evidence-based management, evidence-based decision making, evidence-based education, evidence-based coaching, evidence-based policy, evidence-based sex education, evidence-based fill-in-any-blank are just some of the examples they list from a quick Google search of “evidence-based practice”. For those of us who have taught any course related to evidence-based practice, we know all about the EBM Pyramid and the hierarchy of quality when it comes to evidence. At the top of the pyramid sits the randomized control trial and systematic reviews. Further down, the anecdotal case study. In other words, something happening to one or two people – like me and that other runner – simply doesn’t qualify as enough evidence to state that there is any connection between exercise and celiac artery compression syndrome.

Except when it is enough. As it is/was for the two of us (and no doubt a few others).

I found myself thinking often of my personal case history and the evidence-based pyramid during a number of sessions that I attended during last week’s annual meeting of the Medical Library Association. Why? Well, mostly because I attended a lot of talks on the new roles that librarians and other professionals working within libraries, i.e. PhDs in bioinformatics, are assuming today. People are doing an awful lot of interesting things related to specialized services. I count myself in that lot. I may well be an evaluator now, but I personally think it’s simply an extension of the specialized work that I was doing in the library. But the thing that I kept noticing – and a point I raised in one of the sessions – was when, if ever, will we get past case studies related to these services? When, if ever, will we be able to say as a profession that the successful new roles and services that some libraries are offering today are roles and services that can be adopted broadly? When, if ever, will we have enough evidence that demonstrates the success is based more on the service and the role, and less upon the individual delivering it?

Watching Twitter throughout the meeting, I noticed one person tweet a picture of a slide from Bart Ragon’s (University of Virginia) presentation, “Where is My Data Scientist?” (Disclaimer: I was in a different session at the time, thus am taking Bart’s slide out of context.) The slide read, “Unless you are Kristi Holmes or Michele Tennant – Most librarians lack any of these skills.” For those less familiar with MLA, for many years, Kristi (formerly at Washington University, St. Louis, now the Library Director of Galter Health Science Library, Northwestern University) and Michele (University of Florida) were known as the two PhD biochemistry people in our midst. They were anomalies; scientists working in medical libraries. Today we have more – Jackie Wirz at Oregon Health Sciences University, Meng Li and Yibu Chen at the University of Southern California, and Tobin Magle at the University of Colorado Denver to name a few – but they still remain oddities.

When I asked the panel of Kristi, Tobin, Jackie, Meng, and Jerry Perry (former director of UC-Denver’s medical library, soon to be the same at the University of Arizona’s health sciences library) this question about case studies versus a broader body of evidence, Jackie admitted that sometimes she does wonder if people call on her because they think “Jackie can help” or if they think the bigger, “the library can help.” I don’t mean to suggest that the two are mutually exclusive, but how much are our trends towards specialized services redefining the health sciences/medical library profession, as a whole, and how much are they simply taking advantage of particular individuals and the strengths, expertise, etc. they bring to a particular library?

One of the bits of advice that Kristi Holmes offered during this session was, “Build the best library for your institution, thus what works here may not work there.” It’s hard to argue that this isn’t good advice, yet at the same time I can’t help but wonder about how well it sums up our future as a profession. It’s becoming more and more specialized, more and more individualized, and the parts aren’t easily interchangeable anymore. This can be either good or bad for us. Thinking to what Mae Jemison said in her McGovern Lecture (I wrote about this for the NAHSL blog and will share the link when it’s published), innovation is not inherently good or bad; progressive or regressive. It’s the choices that we make around our innovations, our new ideas, our new roles, and our new services that ultimately make the difference.

I’m a librarian with the title of “Evaluator” sitting in an office in the UMass Center for Clinical and Translational Science. Jackie Wirz is a PhD biochemist and molecular biologist with the title “Biomedical Research Specialist” and an office in the OHSU library. What do we have in common? What do we do that can be teased out, taught to others, and adopted by other libraries, centers, or institutions? To me, that’s a BIG question and something worth continuing to try and answer/address as our profession continues to redefine itself for the future (and now).

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